Topic: Research Update – MND research activity in New Zealand and Australia
12:30pm to 1:30pm, Tuesday 8 November
Join us for this inaugural webinar in the newly developed MND New Zealand Community Forum where leading researchers and neurological practitioners will provide an update on key areas of motor neurone disease research happening on both sides of the Tasman. As the search for a cure continues there is an immense amount of research being undertaken to identify the cause and how to assist people living with MND to manage the disease. This includes drug trials, which is particularly relevant as both countries are embarking on an international trial that, in New Zealand’s case, is the first of its type for this country. This webinar will also feature the release of the New Zealand MND Best Practice Recommendations, which is the result of 2-years collaborative work by clinicians and others across the country.
MND New Zealand is a not-for-profit charity that has been providing community-based support to people living with MND, their whānau, family and carers for approximately 30 years. They are the only providers of this support in the country and totally rely on the generosity of fellow Kiwis to fund the work they do. This includes providing leadership and funding towards MND research including the establishment of the NZ MND Registry five years ago that provides significant support to several research initiatives in New Zealand and overseas.
How to connect to the webinar
- This MND NZ webinar is free for anyone to attend.
- Register once for the MND NZ webinar series and get access to all webinars live and on-demand.
About the Expert Panel
Webinar facilitated by Scott Arrol, CEO, Motor Neurone Disease New Zealand.
Panel participants are:
- Dr Alan Stanley, Consultant Neurologist, Te Whatu Ora - Health New Zealand Te Matau a Māui Hawke's Bay and MND New Zealand National Council member
- Dr Gethin Thomas, Executive Director, Research, MND Australia
- Dr Molly Swanson PhD, Neurological Foundation Research Fellow, Motor Neuron Disease Research Group, Centre for Brain Research & School of Biological Sciences, University of Auckland
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Dr Alan Stanley Consultant Neurologist Te Whatu Ora - Health New Zealand Te Matau a Māui Hawke's Bay and member of the MND New Zealand National
Council
Alan completed training in Internal Medicine and Neurology in Cape Town, South Africa. He provides clinical care for people living with MND on a daily basis. Alan is also the principle investigator for the Lighthouse II phase 3 trial that is about to commence across 4 research sites across the country – a significant first for New Zealand MND research.
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Dr Gethin Thomas Executive Director Research at MND Australia
Gethin has over 20 years of experience as a biomedical researcher, having published widely and secured almost $4M in research funding. He has extensive review experience across a wide range of journals as well as reviewing grants for Australian and International funding bodies including the NHMRC and European Union Horizon 2020 Program.
Over the last 10 years as a senior research manager, he has directed a University Research Office and served as an Associate Dean of Research. He has a deep understanding of research strategy and the research funding system from the grant preparation, application and review process through to management of funded projects at both the researcher and institutional level.
Gethin has been the Executive Director, Research at MND Australia since July 2019, where he oversees the research grant program and manages national and international partnerships. A key aspect of this role if providing a conduit between research programs and the wider MND community through MND Australia and the affiliated State Associations.
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Dr Molly Swanson PhD Neurological Foundation Research Fellow Motor Neuron Disease Research Group, Centre for Brain Research & School of Biological
Sciences, University of Auckland
After completing her PhD in Anatomy at the University of Auckland in 2019, Molly started as a Research Fellow researching Motor Neuron Disease under Dr Emma Scotter.
Molly’ primary research focuses on understanding how the immune cells of the brain (microglia) change in neurodegenerative diseases. Microglia normally function to help the brain heal from damage and/or disease. There is increasing evidence that microglia become dysfunctional in neurodegenerative diseases, which can be toxic to neurons thereby contributing to disease. Due to their potential to both help and harm the brain, understanding how microglia change in disease is key to developing potential therapies.
Molly will give a brief overview of the research that herself and other members of Scotter lab are currently working on.
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Webinar facilitator:
Scott Arrol CEO, Motor Neurone Disease New Zealand
Scott is a highly experienced leader with a broad commercial, business leadership and governance background particularly in the New Zealand health sector, including the charities, not-for-profit and for-profit sectors. He has spent the past 18+ years at the forefront of significant growth and service delivery changes in both the home-based and aged care sectors along with other key areas of community health, disabilities, mental health and digital health, as well as a stint in early childhood care and education.
Scott has held leadership roles in significant organisations including Healthcare of New Zealand, Radius Health, Kindercare and NZ Health IT Cluster (NZHIT, now the Digital Health Association). Scott was CEO of NZHIT for nearly seven years and led its transformation to become the leading peak body for New Zealand’s digital health industry sector. From an academic and governance perspective, Scott received a Master in Business Administration (with Distinction) from the University of Waikato, has lectured in strategic management at the Waikato Business School, been a management mentor for a number of years and served on a number of not-for-profit and commercial boards.
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How to connect to the webinar
- This MND NZ webinar is free for anyone to attend.
- Register once for the MND NZ webinar series and get access to all webinars live and on-demand.
Questions? Email Rose at HiNZ
See all upcoming MND NZ webinars here